Friday, September 2, 2011

September...

September arrived yesterday without a lot of fanfare.  The temperatures dropped a bit, and I'm loving it.  I'm still pretty much housebound, and that would be fine if I could just get my house clean and in order.  Seems like every project I begin gets stalled.  I either get distracted or too tired.  I'm really hoping the cooler weather will help kick my energy into high gear. 

I posted this on my FB page...
Doctor's office phoned and woke me a couple hours ago. She says, "Your results... Oh, hold on a minute." Waited, waited, waited. Comes back on, "I'll have to call you back." What?!
And, I am still waiting.  I am refusing to be anxious, but it does keep trying to creep up on me.  Like a scary movie, you don't know what's around the corner.  The spooky music is playing, getting a bit louder.  Here's hoping it's nothing.  Music fades, birds singing happily, all's right with the world.

UPDATE:

Shortly after writing this, I received my second phone call. I tested positive for PML, which means I am no longer a candidate to receive treatment with Tysabri for the Multiple Sclerosis.  Now we have to look at the pros and cons of Gilenya, a newer MS medication that's only been out for about a year.  This means more blood tests, eye tests, etc., and then approval from my insurance.  It will take a month or more.

So, not so much of birds singing happily. The music is still a little scary, and I do not know what is lurking around that next corner.  It's still an amazing world, I'm thankful to be living, and there is always hope.  I still have hope.

7 comments:

Donna said...

You BET you better still have hope!! There's Always That!!
Everyday there's something new!
Holding your hand today Sweetie!!!
((((HUG)))

Anonymous said...

I WISH WE HAD GOT TO GROW UP TOGETHER AS YOU WRIGHT I HERE THE MOST BEUTFULL WOMAN. I JUST DONT UNDERSTAND WHY THIS HAS TO BE HAPPENING TO YOU AND OTHERS I WILL LIFT YOU AND YOUR FAMILY UP IN PRAYER LOVE YOU

Donna said...

I am so sorry for the disappointing news. Keep those Sirius up and we'll be praying that the other medicine works out for you.

Nita Jo said...

I appreciate that so much! I cried for a while, then told myself "Stop the crying now!" and got on with my day. May still have a few more moments like that, but I will get through it! Love you ladies! You have been such amazing friends to me!

Nita Jo said...

To "Anonymous" I'm thinking this is Ann? It went to my Spam Comment Box and I just found it. I wish we'd grown up together too. I know we'd have been the best of friends as well as cousins! One of these days maybe we'll meet in person again. Thank you for your love and prayers!

Crystal Jigsaw said...

Hi, Nita Jo. Lovely to "meet" you through our mutualnfriend, Donna, a wonderful lady amongst many wonderful bloggers.

I imagine it's difficult to be going through this but research continues and with medical intervention I hope people with MS will experience a richer life. I have a very close friend with the condition.

Best wishes, CJ xx

Nita Jo said...

Crystal, Thanks for stopping by. Was very happy to have found your blog!